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“他们仍然与我们同在”:在线同伴支持论坛中痴呆症照护者的适应性哀伤与持续联系

“They are still with us”: Adaptive grief through continuing bonds in bereaved dementia caregivers in an online peer support forum, a netnographic approach
Mary Gemma O’Donnell、David W. Coon、Janet S. Pohl · Death Studies · 2026-11-05

研究信息

期刊 / 来源
Death Studies
发表日期
2026-11-05
文献库
OpenAlex
作者
Mary Gemma O’Donnell, David W. Coon, Janet S. Pohl
DOI
10.1080/07481187.2026.2755727
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英文原文摘要全文

Bereaved dementia caregivers face significant emotional challenges following the death of a person who had lived with dementia. One way some caregivers navigate these challenges may be through ongoing connections with the deceased. Grounded in the Continuing Bonds framework, this qualitative netnographic study analyzed narratives (n = 1,771 threads; approximately 2 million words) from the Alzheimer’s Association’s ALZConnected online peer support forum using reflexive thematic analysis. Findings revealed six themes illustrating how caregivers expressed continuing bonds in ways that appeared to

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