南非白化病儿童看护者的支持需求

Background: Caregivers of children with albinism often face different challenges, such as stigma, discrimination and targeted violent crimes; therefore, they not only focus on the health needs of their children, but also on the systemic and societal barriers in the communities they find themselves in. Therefore, systemic and societal barriers impose psychological and emotional burdens on caregivers. Aim: To explore and describe the support needs of caregivers of children with albinism in South Africa. Setting: The study was conducted in the Eastern Cape province and Limpopo province. Methods: